Wednesday, June 20, 2012

Diesel Dog Day

Today is the first day of summer.  100 here at the house.  Longest day of the year in a number of ways.  My diagnosis changed many many things.  One of them is Bill's science/mechanical hobby with the veggie diesel has come to and end.  The benz's served us well and off they went today to the big scrap pile near the river.  With Bill as my amazing caregiver I've needed attention that has diverted him from a number of activities and life moments.  He's back from his trip with me still running full tilt with the picc line.  I'm 28 days in and holding my own.  Had a visit with Dr. Hammond in oncology yesterday and asked to be taken off of Arimidex.  It has really been challenging and once my body leveled off with it, it hasn't been so even keeled.  My body hasn't functioned well, and when the temp drops even slightly it makes me stooped over, often with tremors if chilled.  I've had an awkward gait, burning hips while sleeping, cement on my eyes in the morning, and emotional lows - just a few of the crappy side effects.   I do have other options for other meds.  I'll get a break from this for a month or so and have another discussion at July's appointment.  Meanwhile I had to see Dr. Marble right after oncology.  The pesky right side is still uncomfortable.  Bill poked me by accident the other day and I almost gave him a startled response of an elbow square in his face.  Dr. Marble and Sue gave me the same pep talk as Dr. Hammond.  I'm doing well, been through hell, and they will support me all the way through to a healed right side.  Drs. Mckee and Lee tell me the same.  More labs, another wound culture, and more nursing home care.  I am again regrouping mentally as I certainly thought I would be well beyond this point.  That is what I'll use summer solstice for - mental purge with beautiful summer weather.  I welcome any warm weather and look for me to be walking upright!

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