Eve Of Friday

I saw Dr. Marble and Sue this morning.  They gave me the once over.  My right side is still progressing in a better direction.  Obviously this will be slow, slower, and slowest.  So that is where my mind has to be.  Cultures came back with micro growth for GI stuff, which so far, anything trapped in me just moves quickly through my system, and hence the picc line necessity is yet again confirmed.  Not that my fevers, tremors, and bright pink boob didn't confirm that fact.  The Infection Fairy just loves to give me many many clues for each event.  The multiple items on the infection checklist I could do without.  I turn myself in.  I am still more freaking compliant than anyone I know.  Ok so I'm a little past my bedtime but I waited up to talk to Bill.  Signing off now for lights out. 

Wild Minded

Everyone tells me to give myself a break.  Now if you could just convey that to the Life God of What The Crap.  I went off the grid because I have been struggling mentally with all that is in my head.  I used the blog for my purge before and I need to get back to that.  I heard in the movie Julie & Julia that a blog is really self-centered, so it must be true.  Honestly don't care.  It's my blog and like everything else in life we don't have to tune into anything we don't want to.  I just have to be tuned into me.  That part I'm good at and it has saved my sick behind many many times throughout this fight.  That's what I need to keep in mind.
I've had a number of fellow patients ask me what's up...  So it weighed heavy on this wild minded mind of mine if I wasn't positive thinking.   The reality of it all is I have been running full tilt since my mom went into the hospital a week before my second mastectomy in the fall.  I think about all the others who are far more sick than I, did not survive, will not survive.  There are children taking all this cancer treatment, and soldiers and their families forever changed by service to our country.  I do have perspective.  I just have a really hard time giving myself permission to be sad, frustrated, mad..  I am deeply, achingly, sad that my body is too fragile to make love with the man I love oh so dearly; frustrated that each good step forward has had some mind screaming setbacks; mad at those who take advantage of a really good life and not take care of themselves.  Yes - that even meant my own mother.  So I've been continuing to be resolving all this in my head. 
I'm here and back at it each day.  My second picc line is intact and functioning well.  The home care nurse will come tomorrow night (Wednesday), my dressing will be changed, and my lines will be flushed with another dose of antibiotic.  I'll see more of Drs. Marble, Mckee, Lee, Proulx, and Hammond these next few weeks.  They are all good for me and help to keep me propped up in the right direction. 

House of 'Cin

Fun day today.  (Not)

As mentioned in my last post, Tracy has been running a little hot the last few days, and well – she got really hot and bothered today along with being shaky and crooked.  She had gone in for a quick looksee by the docs, and I got a text about an hour later saying “Not being admitted, but am getting another PICC line..”.  

 Crap. 

Well – the good news is – looks like they were able to get ahead of this one, and for the next week or so, nightly at-home infusions of saline, Daptomycin, saline, heparin will be the drill. 

Oh – and she’ll keep taking the already prescribed clindamycin and ciprofloxacin.

Hot Babe in the house

Sorry everyone – it’s been a while.  Lots of things happening, some things good, some things not so good. Tracy’s been on track since her last surgery in November, with one revision to clean up a persistent gap in a seam.     We’ve sort of been meandering along for the last several months, and a few days ago, she started not feeling so great.  It started out as a soreness in her right side a few days ago, and progressed downhill from there.   Well – after she spiked a 101 temp,  a trip to Exeter Hospital ensued and we're sure she's back on the path forward.    Fortunately, no inpatient spa trip this time, but instead a massive dual-dose cocktail of antibiotics to take for a few weeks.  She is pretty shaky this evening, but with a double initial dose of her meds and one of my custom greek yogurt orange blueberry mango smoothies she should be back in shape in a day or so.  For now, laying low is the prescribed course.

Add on top of that my pending departure.  No – not what you think (or hoped?!?).  Since things were going soooooo well a month or so ago, I took a couple up on an opportunity to help them deliver their a sailboat (a Cabo Rico 45) from south Florida.  I fly out next Thursday morning at 6:00 AM, and arrive in Vero Beach mid-morning.  We get the boat provisioned, fueled, watered, and then leave at the crack-o-dawn on Friday morning.    Our plan is to head out several hundred miles, catch the Gulf Stream and sail up just about 75 miles or so off of Cape Hatteras, then bear left up to Rhode Island.  All things being what they should be, we’ll be out to sea for about a week working a 4 hour on, 8 hour off watch schedule around the clock with the afternoon watch shortened by 2 hours. And – I'll be off the grid.  No cell, no internet, no email, no twitter, no facebook.  Wahoo.   So – keep an eye on Tracy for me.  She can’t be trusted.